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Rob's Story: Life with a feeding tube

Follow the link below to the ACI website which has a video where Rob and his wife Lynne explain their experience of living with a gastrostomy feeding tube.

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A new website has been launched which is intended to support people living with MND and their carers who may be considering the placement of a feeding tube.

This is the result of a collaboration with people living with MND and their carers, health professionals and some very clever web designers and film makers: http://mytube.mymnd.org.uk/ The website contains short films about making the decision to have a feeding tube placed, experience of having a tube fitted, caring for the tube and the carers experience. Please check it out and feel free to share...


PENG are proud to have partnered with NNNG and PINNT in the development of some resources to support patients on their enteral and parenteral journey.

Enteral tube feeding – your questions answered

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Having an enteral feeding tube – further questions to ask

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Parenteral nutrition – your questions answered

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Download PDF (double page spread version)